Day 3...This morning I took R over to see TL for the first time. A lady from the ICU floor came out to meet her and orient her before we went back. She took a Polaroid of TL and his room to give RV a peek of what was back there and asked RV some questions to get a feel for what she already understood and what might be scary for her. It's amazing what kids pick up on; I had talked to RV a little about what was going on and had even showed her a picture of TL with his head wrapped up, thinking it might help. She knew that he was in a crib and that he had his "Ernie" in his bed. She also said that he was needing some shots and that he had a fever (sometimes what you say is different from what they hear).
Once back in TL's room, RV was mostly excited about giving TL his bear. She then quickly became more interested in the movie he was watching than anything else. After the visit, RV left with her Dad (yes, he finally stepped out of the hospital today) and my parents traded off between staying with TL and me in his room and watching Sarah down in the lobby (no children under 3 allowed on the ICU floor).
They wrapped up the video EEG and removed the "stickers" from his head, which was not very fun for him, but in the end, I think he was glad to have all of that off. Neurology let us know that the EEG did not reveal any seizure activity and confirmed (yet again!) that TL simply has breath-holding-spells. He seemed a lot more himself as the day went on--still low key, but playing and eating much better.
Dr. Megison set tomorrow as the day to remove the tube from the incision site in TL's side. It's not for sure, but there's a chance that if things are looking good, they might move him down to the regular recovery floor for his last night. Here's hoping.
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